was born with the biggest disease no one has ever heard of... until now. Watch as she rises from living in obscurity to becoming - in the words of her late father - the face of CMT (Charcot Marie Tooth disease). Affecting over 2.6 million worldwide, CMT is a nerve and muscle disorder that causes it's victims to deteriorate over time. There is no cure. It is a family secret. It goes undiagnosed and misdiagnosed way too often. In some cases, it can be fatal. This project is the first full length film on this subject.

Starring:

Genre:

Biography, Documentary